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Sue's Story

Image by Dave Hoefler

The Sue's Story Project

Sue's Story is an award winning documentary that captures Sue Berghoff’s journey with Lewy Body Dementia (LBD), because she wants others to benefit from her experience. 

With captivating interviews to medical experts and researchers, the film  constitutes a powerful educational tool.

The mission of Sue's Story continues through ongoing screenings and events.

From "The Sue's Story Project" Website


"With each screening of SUE’S STORY we’ve witnessed its power to spark conversation and inspire social change in the form of:

  • Growing awareness and understanding of dementia in general and in LBD in particular

  • Removing the stigma wrongly associated with dementia

  • Attracting research funding focused on LBD, bringing it out of the shadows of Alzheimer’s and Parkinson’s disease

  • Advocating for community-based caregiver resource for families living with LBD"


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